Walking for Individuals with a Rare Genetic Disorder
11:13 AM, May 9, 2018
Robin Lane and Stacy Cefalu both have kids with a genetic disorder called Angelman Syndrome. Their children have happy personalities, but suffer on a daily basis. They describe life for their loved ones as being "locked in a box and they just can't get out." Robin and Stacy join us to discuss the disorder and a special walk coming up that is raising awareness and celebrating the lives of the incredible people affected by Angelman Syndrome.
The 20th Anniversary of the Angelman Syndrome Foundation's Walk is taking place on Saturday, May 19 at Hoyt Park in Wauwatosa at 9:30am (registration starts at 8am). For more information on this family friendly event with live music, refreshments, silent auction, games and more, visit Angelman.org/walk.