Bill and Melissa Ustruck’s two sons both lost their battles with Battens disease at the age of 6. NCL2 battens, which the boys had, has a life expectancy of 6-10 years old. Children are born healthy, around age 3 after hitting most milestones, the child begins having vision problems, seizures and ultimately loses all abilities both mental and physical. Sullivan passed away in December 2013 and Colton in April 2015. The family is honoring the memory of Sully and Colty, and fighting against Battens Disease with a very unique fundraiser. Bill and Melissa join us with all the details on the Batting Against Battens Wiffleball Tournament.
Don't miss the Batting Against Battens Wiffleball Tournament on Saturday, August 18 from 9am to 5pm at the 5 Diamonds Complex in Waukesha. There are divisions for all ages! For more information and to enter a team (4-5 players), email WilliamUstruck@gmail.com.