"Within a few months of being on treatment we couldn't see tumors anymore," explained Dr. John Charlson, Froedtert Hospital and Medical College of Wisconsin.
The drug trial ended when that outcome did not happen for every patient.
"We don't have a real great safe 'Yeah this is the drug were going to use,' 'This is the sarcoma drug thats going to save you if you grow more tumors again,'" said Sarah Kaehny, stage 4 cancer survivor.
Sarah hopes that will be answered to save future patients.
Compassionate care from the Sarcoma Foundation of America is keeping her treatments going.
If you would like to donate or learn more about the Sarcoma Foundation of America, click here.